Guidelines and Resources Committee

The Garrod Guideline Committee was established to formulate clinical guidelines, endorse existing guidelines, and write statements pertaining to specific Metabolic diseases/disorders. The Committee will assemble Task Forces to conduct the literature review of specific diseases/disorders. These Task Forces will report back to the Committee. Evaluation and endorsement of existing guidelines will be done using the AGREE II tool.

Liaison and Relationships Committee

At the time of the 2019 Garrod mtg Dr Andreas Schulze, President of the Garrod Association, expressed his support for the development of this Committee to provide more input to the Executive in matters related to public policy and to represent a strong voice for patient support organizations. It was suggested that the L and R committee could function as a “face” of the Garrod representing the patients and their families with IEMs. It was proposed that the L and R committee could liaise with patient organizations, could work with provincial drug plans and be recognized as the “go-between” between support groups and Industry. It was proposed that eventually this committee could evolve into a Standing Committee that is easily accessible, provides information to government and other bodies requesting information regarding drug coverage and overall help people navigate the “system”.

Grants and Awards Committee

More to come.